Yeah Baby ... Yeah Picnic in the Park ... Baby
I hate Duchenne.
I know we are fighting the good fight, but at times, you know, it just stinks…..
Enough already, so ready to #derailduchenne…………
You keep us going, the constant support, generous spirit and always present prayer gives us HOPE that maybe one day – we can say “Hey … Wow!!!! It’s our 10th Anniversary Free of Duchenne.”
We can make that happen, you can make that happen. Keep this going and keep the giving coming!
Invite your Friends, Family, Co-Workers to our Picnic in the Park on 7.8.17 – you die hards out there know this is an incredible Family centered AFFORDABLE event….
We have great new events
Coupled with our tried and true great kid’s games, raffles, GERMAN BEER, amazing FOOD (all about the food) and Victory Highway to keep you dancing! The handcrafted raffle items are amazing again this year as well, the basket raffles are shaping up to be STELLAR!!! Disney tickets, Airline Tickets, Tv, Furniture, Artwork, gift cards…. Oh so excited!
A GIANT Thank you to our beautiful Grandma Barb Muniak for her relentless work in soliciting so many amazing raffle items!!! Love love you!!
For those that need a checklist to keep you motivated and focused…. Here you GO Baby! Derail sweet thing!!! Derail…….
It has been an insane year with Owen’s surgery in September and his recovery. Thanking God that we are still in the Eteplirsen Study so he continues to gain strength as he continues to still recover from spine surgery.
Loving on the Sunshine and that the Boys will be off school in a few days! Rutger flew through his first year of High School and despite our urging to stop – he keeps growing! Wade is doing swimmingly in school as well and all three are just ready to do nothing but Chill, enjoy the treehouse, Larry and life.
Happy Father’s Day to all of our amazing Dads! And please, keep doing what you do best, pray for our Duchenne boys and support our biggest event of the year!!
God bless you and Happy Summer