JOA Picnic in the Park 7/9/22
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Learn about our Journey
Learn About JOA as Fox 8
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About DMD and JOA
Duchenne Muscular Dystrophy (DMD) is a fatal progressive disorder that causes loss of muscle function and independence. John Owen’s Adventure Inc. (JOA) is dedicated to discovering a treatment, improving research and establishing education and awareness programs about DMD for all individuals who are affected by this disease. JOA is also committed to raising awareness and research dollars to treat juvenile diabetes, a chronic disease affecting nearly 26 million Americans.
So, what’s with 51?
51 is the exon for Owen’s Duchenne that when genetically skipped, tells his brain to start making the life changing dystrophin he otherwise cannot make. Owen’s Duchenne mutation is 49 and 50. If you would like a quick, non-scientific lesson on how exons and your brain reads them, ping me – I’ll tell ya. But for brevity sake, 51 means everything to us. (Note not all Duchenne is the same so Owen’s 51 may not be the same life changer as for other duchenne kids/adults).
The circular words represent our Mantra – some words from our spirit, some from Owen’s 7th and 8th Football team that truly embraced what it means to be All In:
All in
One Team
Be Brave
Love Harder
Shine on
Derail Duchenne
51
We think if we can do just one of these, any day, any time, for one or for all….. we will not just make this a better place, but we will #derailduchenne.
Please check us out and contact us at jen@joainc.org
51 is the exon for Owen’s Duchenne that when genetically skipped, tells his brain to start making the life changing dystrophin he otherwise cannot make. Owen’s Duchenne mutation is 49 and 50. If you would like a quick, non-scientific lesson on how exons and your brain reads them, ping me – I’ll tell ya. But for brevity sake, 51 means everything to us. (Note not all Duchenne is the same so Owen’s 51 may not be the same life changer as for other duchenne kids/adults).
The circular words represent our Mantra – some words from our spirit, some from Owen’s 7th and 8th Football team that truly embraced what it means to be All In:
All in
One Team
Be Brave
Love Harder
Shine on
Derail Duchenne
51
We think if we can do just one of these, any day, any time, for one or for all….. we will not just make this a better place, but we will #derailduchenne.
Please check us out and contact us at jen@joainc.org
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Make a WishIn 2016, Owen was the proud recipient of a Make a Wish - the team built a tree house, fully accessible for Owen and all that love him. The tree house is fully accessible with running water, electricity, a wood burning stove and built for years and years of priceless memories.
Thank you to Make a Wish! Know that any donation you give to Make a Wish will build priceless memories for our special kiddos. (View video left) |
Duchenne Alliance
JOA is a proud member of the Duchenne Alliance.
The Alliance is a group "of independent Duchenne organizations dedicated to advancing our missions to improve quality of life, care, and treatment of those affected by Duchenne. Our goals will be achieved by building trust, sharing knowledge, leveraging resources, and streamlining business practices. Each organization will be held to achieve their own mission as we collectively serve the entire Duchenne community."
The Alliance is a group "of independent Duchenne organizations dedicated to advancing our missions to improve quality of life, care, and treatment of those affected by Duchenne. Our goals will be achieved by building trust, sharing knowledge, leveraging resources, and streamlining business practices. Each organization will be held to achieve their own mission as we collectively serve the entire Duchenne community."