About DMD and JOA
Duchenne Muscular Dystrophy (DMD) is a fatal progressive disorder that causes loss of muscle function and independence. John Owen’s Adventure Inc. (JOA) is dedicated to discovering a treatment, improving research and establishing education and awareness programs about DMD for all individuals who are affected by this disease. JOA is also committed to raising awareness and research dollars to treat juvenile diabetes, a chronic disease affecting nearly 26 million Americans.
JOA is a proud member of the Duchenne Alliance.
The Alliance is a group "of independent Duchenne organizations dedicated to advancing our missions to improve quality of life, care, and treatment of those affected by Duchenne. Our goals will be achieved by building trust, sharing knowledge, leveraging resources, and streamlining business practices. Each organization will be held to achieve their own mission as we collectively serve the entire Duchenne community."
The FDA is close to approving the drug Eteplirsen, a potential "miracle drug" which will help boys with DMD live a normal life. Please consider the following ways to get in touch with the FDA to encourage them to expedite the process: