Rutger graduated from North Royalton High School with highest Honors. We are so very proud of him as he continues his next education steps at our Alma mater, Cleveland State University. John Owen finished tenth grade at NRHS, though the last few months were virtual, he really did enjoy his sophomore year. Wade will embrace his last year at St. Albert the Great. Gosh Do Not Blink! How fast they grow up, treasure every moment.
The LIVE event starts at 11 am on July 11! The auction will stay open through July 17 ~ that's right ~ a WEEK LONG Event to #derailduchenne!
We are so fortunate to have the support of Parent Project Muscular Dystrophy to host this event on One Cause (Bidpal) platform. We have some surprises lined up, including a live music event! Please REGISTER at http://bidpal.net/joa2020
Click SIGN IN on the top right so we can keep in touch with you throughout these weeks and when the bidding / event goes LIVE! You will receive text messages from a six digit number, no worries ~ that is actually us! Winners will be notified July 17 with instructions for item pick up at JOA headquarters.
You can start browsing the site NOW! We are adding auction items daily, why not get a head start ~ check out our amazing donations! Thank you to all the friends, family and corporations that are supporting us this year. It is a very rough year for many businesses and families, yet giving continues to Derail Duchenne! Our sponsor site will be updated soon, be sure to visit the many local businesses and thank them for their generosity.
Owen continues to do very well on Exondys 51. We continue his therapy routines and make sure he is staying clear of germs. Early this year his cardo work up was spectacular! He continues to maintain current muscle use and his lungs and heart functions are normal ~ so grateful for that.
We are GRATEFUL FOR YOU!
God Bless you
Tony, Jen, Rutger, Owen & Wade