Today is an official Holiday in the Dumm household, Pajama Day.
The day after Christmas is always spent in our jams, playing games, building Lego’s and doing nothing but fun. The boys love Pajama Day!
We hope your Christmas was fantastic! We had a great Christmas filled with celebrating with family and friends. Our joy continues as we will continue our Favorite Things of the Holiday though the New Year!
The day after Christmas is always spent in our jams, playing games, building Lego’s and doing nothing but fun. The boys love Pajama Day!
We hope your Christmas was fantastic! We had a great Christmas filled with celebrating with family and friends. Our joy continues as we will continue our Favorite Things of the Holiday though the New Year!
We have had quite a year with the FDA, Sarepta, Exon Skipping and the carrot of hope dangled in front of all us. I wish we could tell you that there is progress behind the scenes on this drug. We simply don't know which way the FDA is going these days. There was a great forum on 12.12.13 hosted by PPMD which again pushed our cause into the laps of the FDA. This effort has been lead by so many parents of Duchenne boys, it would be impossible to name them all. But for each of them we are grateful as we are for you. The fight to keep pushing our cure forward is paramount. Prayers continue in that the FDA heard us. For more details visit PPMD.
JOA kids having fun at the 2013 Chili Cook Off As we move into 2014, there are many opportunities to stay on board the JOA train. Easy ones and hard ones. How about an easy one for you to start?
New Year’s Day - 100 Mile Miracle Run
Joe Vasil and John Farinelli (both St. Albert Dads) will embark in their training for the 100 Burning River Run in August. We challenge each of you reading this to train with them. Whoa, 100 miles you say ….. WHAT???? Oh it will be easy peasy. We would like to have as many people as possible to join the 100 Mile Miracle Run.
Here is the deal, starting New Years Day through July Walk or Run 100 miles (on your own) to support these amazing guys that will run 100 miles for John Owen all at once! If they can run 100 miles for 30 hours straight, you certainly can grab 4 miles a week walking or running for John Owen.
New Year’s Day - 100 Mile Miracle Run
Joe Vasil and John Farinelli (both St. Albert Dads) will embark in their training for the 100 Burning River Run in August. We challenge each of you reading this to train with them. Whoa, 100 miles you say ….. WHAT???? Oh it will be easy peasy. We would like to have as many people as possible to join the 100 Mile Miracle Run.
Here is the deal, starting New Years Day through July Walk or Run 100 miles (on your own) to support these amazing guys that will run 100 miles for John Owen all at once! If they can run 100 miles for 30 hours straight, you certainly can grab 4 miles a week walking or running for John Owen.
This is a progressive run and a great self paced event that will kick off at 10:00 am at Station Road Bride in Brecksville on New Years Day with our first mile. We ask that when you commit to moving for John Owen, you ask for pledges per mile, track your miles and culminate the fun at the 100 Mile Miracle Run Party at the end of July!
You can sign up here or contact [email protected] for more information. Looking forward to making a few miracles with you soon!
You can sign up here or contact [email protected] for more information. Looking forward to making a few miracles with you soon!
Dodgeball March 29
Yes Dodgeball is back this year! Check it out here and sign up for this really fun event. It is a great way to get the Cabin Fever out of your bones.
Moving Spirit
You can’t stop our spiriters! This year we have both a running team and a walking team! Please check out our Moving Spirit Page to embrace the details. The Cleveland Rite Aid has not been the same since our sea of JOA orange hit them last year! Join us please for your walking or running legs to help derail Duchenne via the 5k, 10k, half marathon or full on 5.18.14.
Oh yea, if you are committing to the 100 Mile Miracle Run then just simply tag this on! How easy will these miles look after four months of moving!!!
Yes Dodgeball is back this year! Check it out here and sign up for this really fun event. It is a great way to get the Cabin Fever out of your bones.
Moving Spirit
You can’t stop our spiriters! This year we have both a running team and a walking team! Please check out our Moving Spirit Page to embrace the details. The Cleveland Rite Aid has not been the same since our sea of JOA orange hit them last year! Join us please for your walking or running legs to help derail Duchenne via the 5k, 10k, half marathon or full on 5.18.14.
Oh yea, if you are committing to the 100 Mile Miracle Run then just simply tag this on! How easy will these miles look after four months of moving!!!
How we doing?
We were so lucky to have one full month of early snow! The boys got to do their favorite thing, Hillbilly Sledding already! They have so much fun sledding with Tony through our yard, it is awesome!
We are holding our own! Great news in that Owen received his first fitted wheelchair. He also finally got back into PT and we are seeing great things out of him with Merri-Jo. His check ups for this year have been steady, no major declines and all major organs doing what they are supposed to do, Victory!
So excited to spend these last few days of the year with the boys, spreading the cheer in the birth of Christ and ringing in the New Year.
We were so lucky to have one full month of early snow! The boys got to do their favorite thing, Hillbilly Sledding already! They have so much fun sledding with Tony through our yard, it is awesome!
We are holding our own! Great news in that Owen received his first fitted wheelchair. He also finally got back into PT and we are seeing great things out of him with Merri-Jo. His check ups for this year have been steady, no major declines and all major organs doing what they are supposed to do, Victory!
So excited to spend these last few days of the year with the boys, spreading the cheer in the birth of Christ and ringing in the New Year.
June 2009 Vacationing with Uncle Bob in FL - So sweet 2014 will be an interesting year in that Owen will turn 10, Rutger 12 and Wade 8. The boys are growing way too fast and with each passing year we look back and cherish the sweet memories we have. We try so hard to live in each moment, celebrate today, rejoice in the second and not dwell in the future.
So our Christmas and New Years wish for you is that you hold today so deeply in your heart that it is filled with joy, Today.
God bless you, Merry Christmas and Happy New Year!!
So our Christmas and New Years wish for you is that you hold today so deeply in your heart that it is filled with joy, Today.
God bless you, Merry Christmas and Happy New Year!!
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