JOA Picnic in the Park July 13, 2024
Plans for our annual Picnic in the Park are underway. We need YOU!
Our Picnic in the Park is a fantastic evening at the beautiful German Central Park in Parma, Oh. Always the 2nd Saturday in July, the event host @2,000 people. Activities include Live Music by Shadow of Doubt (Tom Petty cover band), Food Trucks, Kids Games, Raffles, Hole in One Contest, Nerf War, Mario Kart Challenge, 50/50, Booze Barrel and Wine Pull. And of course amazing German Beer. New this year - Family Photo Booth. Free admission to this fundraiser. Our goal is to raise $50k to #DerailDuchenne Muscular Dystrophy.
We are so excited to share our Raffle List with you- please check out all the amazing items you can win on July 13 - Share this event with your family, friends, co-workers and neighbors - it is an amazing night!
ABOUT DUCHENNE
Duchenne Muscular Dystrophy is a beast of a disease that robs young boys of their ability to produce dystrophin, a muscle protein needed for their muscles to thrive. We have worked tirelessly over the 16 years to raise awareness and hope to fund a cure. Today there is no cure, but there are promising therapies in the horizon. Unfortunately, this beast did not wait for a cure for our son, John Owen. He passed away in 2023 at the age of 19, despite our efforts to save him. We will not give up hope to end this disease. Your participation in our Picnic in the Park will have a huge impact on our continued to fight in honor of John Owen to derail Duchenne for the next generation.
John Owen’s Adventure, Inc (JOA) is a North Royalton, OH non profit 501c3 founded by parents of John Owen, Tony & Jen Dumm. They aim to fund awareness for chronic childhood illnesses including Duchenne Muscular Dystrophy. They develop funds for finding a cure, sustaining the quality of life for these children and educating the general public about such illnesses. We have raised over $1,000,000 all in efforts to cure Duchenne.
Our Picnic in the Park is a fantastic evening at the beautiful German Central Park in Parma, Oh. Always the 2nd Saturday in July, the event host @2,000 people. Activities include Live Music by Shadow of Doubt (Tom Petty cover band), Food Trucks, Kids Games, Raffles, Hole in One Contest, Nerf War, Mario Kart Challenge, 50/50, Booze Barrel and Wine Pull. And of course amazing German Beer. New this year - Family Photo Booth. Free admission to this fundraiser. Our goal is to raise $50k to #DerailDuchenne Muscular Dystrophy.
We are so excited to share our Raffle List with you- please check out all the amazing items you can win on July 13 - Share this event with your family, friends, co-workers and neighbors - it is an amazing night!
ABOUT DUCHENNE
Duchenne Muscular Dystrophy is a beast of a disease that robs young boys of their ability to produce dystrophin, a muscle protein needed for their muscles to thrive. We have worked tirelessly over the 16 years to raise awareness and hope to fund a cure. Today there is no cure, but there are promising therapies in the horizon. Unfortunately, this beast did not wait for a cure for our son, John Owen. He passed away in 2023 at the age of 19, despite our efforts to save him. We will not give up hope to end this disease. Your participation in our Picnic in the Park will have a huge impact on our continued to fight in honor of John Owen to derail Duchenne for the next generation.
John Owen’s Adventure, Inc (JOA) is a North Royalton, OH non profit 501c3 founded by parents of John Owen, Tony & Jen Dumm. They aim to fund awareness for chronic childhood illnesses including Duchenne Muscular Dystrophy. They develop funds for finding a cure, sustaining the quality of life for these children and educating the general public about such illnesses. We have raised over $1,000,000 all in efforts to cure Duchenne.
Tailgate with JOA and NORO Key Club
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About DMD and JOADuchenne Muscular Dystrophy (DMD) is a fatal progressive disorder that causes loss of muscle function and independence. John Owen’s Adventure Inc. (JOA) is dedicated to discovering a treatment, improving research and establishing education and awareness programs about DMD for all individuals who are affected by this disease. JOA is also committed to raising awareness and research dollars to treat juvenile diabetes, a chronic disease affecting nearly 26 million Americans.
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So, what’s with 51?
51 is the exon for Owen’s Duchenne that when genetically skipped, tells his brain to start making the life changing dystrophin he otherwise cannot make. Owen’s Duchenne mutation is 49 and 50. If you would like a quick, non-scientific lesson on how exons and your brain reads them, ping me – I’ll tell ya. But for brevity sake, 51 means everything to us. (Note not all Duchenne is the same so Owen’s 51 may not be the same life changer as for other duchenne kids/adults).
The circular words represent our Mantra – some words from our spirit, some from Owen’s 7th and 8th Football team that truly embraced what it means to be All In:
All in
One Team
Be Brave
Love Harder
Shine on
Derail Duchenne
51
We think if we can do just one of these, any day, any time, for one or for all….. we will not just make this a better place, but we will #derailduchenne.
Please check us out and contact us at [email protected]
51 is the exon for Owen’s Duchenne that when genetically skipped, tells his brain to start making the life changing dystrophin he otherwise cannot make. Owen’s Duchenne mutation is 49 and 50. If you would like a quick, non-scientific lesson on how exons and your brain reads them, ping me – I’ll tell ya. But for brevity sake, 51 means everything to us. (Note not all Duchenne is the same so Owen’s 51 may not be the same life changer as for other duchenne kids/adults).
The circular words represent our Mantra – some words from our spirit, some from Owen’s 7th and 8th Football team that truly embraced what it means to be All In:
All in
One Team
Be Brave
Love Harder
Shine on
Derail Duchenne
51
We think if we can do just one of these, any day, any time, for one or for all….. we will not just make this a better place, but we will #derailduchenne.
Please check us out and contact us at [email protected]
Learn about our Journey
Learn About JOA as Fox 8
Cleveland's Own (Click pic)
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Make a WishIn 2016, Owen was the proud recipient of a Make a Wish - the team built a tree house, fully accessible for Owen and all that love him. The tree house is fully accessible with running water, electricity, a wood burning stove and built for years and years of priceless memories.
Thank you to Make a Wish! Know that any donation you give to Make a Wish will build priceless memories for our special kiddos. (View video left) |
Duchenne Alliance
JOA is a proud member of the Duchenne Alliance.
The Alliance is a group "of independent Duchenne organizations dedicated to advancing our missions to improve quality of life, care, and treatment of those affected by Duchenne. Our goals will be achieved by building trust, sharing knowledge, leveraging resources, and streamlining business practices. Each organization will be held to achieve their own mission as we collectively serve the entire Duchenne community."
The Alliance is a group "of independent Duchenne organizations dedicated to advancing our missions to improve quality of life, care, and treatment of those affected by Duchenne. Our goals will be achieved by building trust, sharing knowledge, leveraging resources, and streamlining business practices. Each organization will be held to achieve their own mission as we collectively serve the entire Duchenne community."